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Showing posts from November, 2022

A Simple Twist of Fate

Although I am not much of a Dylan fan - I could never get past his mediocre voice - my partner Alisa is, and this is one of her favorite songs. And it applies brutally to what has happened to her, which is that she was formally diagnosed with #ALS in January 2022, after a series of doctor visits. So this blog is going to turn into a a bit of an #ALS journal for a while, although not necessarily exclusively. We have a CaringBridge site set up so I'll not duplicate much of that. One thing that didn't make it on the CB site was my initial email to family and friends, which I do want to reproduce here as a record of how things went early on. I'm going to go back a little bit for those who haven't been part of the process early on. We noticed some speech and swallowing difficulties in the late spring early summer last year. We didn't think too much about it (but should have of course), thinking it was due to some sores in her mouth (as opposed to the cause of those sore